EDS group set to scale Scafell Pike to raise money and awareness

EDS logoAN Ehlers–Danlos syndrome (EDS) awareness group are set to climb Scafell Pike in May.

The venture will coincide with EDS awareness month under the name: Can zebra’s climb mountains?

The scale has been set up by Jo Haig from Thornhill, both Jo and her child suffer from this condition.

Mrs Haig said: “Very little is known about EDS in Cumbria, both within the public and within medical professions, our aim is to change that.”

Twenty volunteers, including Jo will be scaling Scafell to raise awareness and money in aid of EDS.

The group secured corporate funding to cover the cost of the climb so that all money raised can go to EDS.

The group had a cheque presentation at the Park Head on February 17.

EDS is a collection of inherited conditions that fit into a larger group, known as heritable disorders of connective tissue.

Connective tissues provide support in skin, tendons, ligaments, blood vessels, internal organs and bones.

There are different types of EDS that may share some features, including: joint hypermobility, increased range of movement of joints, stretchy skin and fragile skin tissue.

Mrs Haig said: “We have a great group all working together to make this invisible illness, visible.”